When I told John Dwyer, CEO of GAP, Global Alzheimer’s Platform, that I would be in Vegas speaking about the impact of caregiving on caregivers at a Senior Helpers convention, he graciously offered to arrange a tour of the Cleveland Clinic: Lou Ruvo Center for Brain Health and put me in contact with Dr. Kate Zhong,…
Today Is Mine
On Wednesday July 13, 2016, I had the privilege of speaking at the Ideagen UN Empowering Women and Girls 2030 Summit. We started our day by attending the Ideagen U Cross-Sector Innovation Fellows Program at the EU Delegation to the UN. I was in a large conference room with some of the most brilliant and…
Caregiver’s Bill of Rights P.2
I have the right: To seek help from others even though my loved ones may object. I recognize the limits of my own endurance and strength. – A Caregiver’s Bill of Rights All caregivers of people with Alzheimer’s – both women and men – face a devastating toll. Due to the physical and emotional burden of…
Memory Support Communities
Let’s face it, we are all living longer and, if we live long enough, most of us are going to need some help. For many, remaining in their own home is their first choice and may be the only affordable option. Unfortunately, circumstances sometimes require more resources than a home environment can provide. (Perkins 1)…
Valentine’s Day
I spent Valentine’s Day with my sweetheart. We sat down at the table for lunch and Glen bowed his head to pray. Glen said, “Oh, thank you, thank you, Heavenly Father!” The dining room went silent. The care associates stopped what they were doing. Glen continued on, “Thank you, thank you!” We all joined in,…
- Alzheimers
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Neurological Awareness at the Oscars!
This was a year for Neurological Awareness at the Oscars! Our documentary, Glen Campbell…I’ll Be Me, allowed people a glimpse at the “real deal!” We were the ultimate reality show, holding nothing back, in hopes of de-stigmatizing the disease, encouraging caregivers, and speeding up research to find a cure. Then there was Still Alice, the…
Glen Campbell… I’ll Be Me Soundtrack
This wonderful project is very near to our hearts. Big Machine Label Group really believed that there needed to be a soundtrack for the documentary – and they were right! Why wouldn’t a soundtrack be released when the main subject is a world-class musician? The album features six songs by Glen including the Oscar-nominated and…
- Alzheimers
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The Caregiver’s Bill Of Rights P.1
There are some days when I cannot get myself out of an internet wormhole. I will scour the web for hours for sources of comfort and information to make me the best caregiver I can for my husband. In my web browsing travels, I have found multiple resources that have made me pause and think…